As I've mentioned before, I'm worried about Maggie's muscle and/or balance issues. On Friday, she had an appointment with a doctor in the rehab clinic at Children's Hospital. He basically said the same thing everyone does. Hmmm - I'm not sure.
It's hard to tell what exactly is wrong. It's one of two things - or a combination of the two. At birth, Maggie had a grade I brain bleed. This really isn't significant, and isn't much to worry about. However, combined with what's going on with her, it might be. There could be some scaring from the brain bleed that is causing her balance issues and minimal core strength. The doctor said we can do an MRI to see if there is any scarring. Ultimately though, the treatment would be the same no matter what. The other potential cause is weakness in her ankles. The doctor said we could get some orthotics. This may or may not help. The last thing is PT. We are already getting PT through Child Find. We can also get PT through Children's Hospital, but I would have to take Maggie there for 1 hour each week. This is not ideal, and he agreed that we can continue with the in-home PT unless I feel our PT isn't doing a good job or if there is absolutely no progress.
So, what did I choose to do? I decided to go ahead and have the MRI and to get the orthotics. Why? Because of the synagis shots the girls had earlier this year, we are completely maxed out on our out-of-pocket maximum for insurance. If we just continue with PT, the doctor may decide that the orthotics and/or the MRI are necessary. If I wait until next year, this will be a large out-of-pocket expense for me. When you're supporting 5 people on one income, these are necessary considerations.
Next up - orthotic fitting appointment later this month. MRI appointment is not yet scheduled. Three month follow-up with the same doctor.
